Family and friends of Mansfield boy who died of rare illness raise more than £2,000 for specialist nurse

editorial image

The family and friends of a Mansfield boy who died following a rare illness have raised more than £2,400 for the charity which helped him through the last 18 months of his life.

Thomas Burton, who died from complications after a bone marrow transplant had a rare life long illness Chronic Granulomatous Disorder (CGD) which affects between four and six people per million in the UK.

The disorder has only one dedicated specialist nurse in the UK, Helen Braggins, whose work is funded by the charity CGD Society.

His mum Michaela Burton, said: “Thomas recognised that the work his nurse Helen did was valuable not only to himself, but to other CGD sufferers and he was determined to raise funding for her position as her work was not funded by the National Health Service.

She said Tom’s specialist nurse had became a great friend of the family.

“Helen made such a difference to the last 18 months of Tom’s life and the work that she does with the charity is immeasurable.”
A total of £2465.41 was presented to Helen, raised at St Marks Church in Mansfield, where Tom was a member and his school, Samworth Church Academy.