In search of a cure for rare strain of Battens

Andrew and Sarah Dawkins, parents of 9-year-old twins Freddie and Louie.

Andrew and Sarah Dawkins, parents of 9-year-old twins Freddie and Louie.

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A charity ball with over £9,000 worth of prizes is set for this Saturday in a bid to help Hucknall twins suffering from the deadly form of Batten’s disease.

Andrew and Sarah Dawkins, parents of 9-year-old twins Freddie and Louie, were devastated to learn that their sons’ health will increasingly deteriorate as they grow with this life limiting disease.

In February this year, the parents began fundraising to raise vital funds needed to commission research into the CLN5 form of Batten. Their efforts have not gone unnoticed after being backed by family, friends and their local community.

Suzanne Jackson, family friend, said, “The generosity of businesses far and wide has been unbelievable in helping us make this ball something very very special. There will be a lot of seriously happy winners which helps us achieve this event as a great celebration and obviously a great fundraiser!”

The fundraising total currently stands at over £40,000, and the couple are eager to raise more money to continue the vital research into the cruel disease.

To boost the funding, a Battle Batten Black, White and Blue Ball will take place on Saturday 8th November at Goosedale Banqueting Centre in Papplewick.

Guests at the Ball will be treated to live music, a disco, raffle, a casino and a silent auction hosting over £9,000 worth of prizes.

For those who are unable to attend, a Battle Batten Auction has been set-up on-line in tandem with the ball to help increase funds at www.jumblebee.co.uk/battlebattenauction