THE SMILE of little Beau Angelides, of Hucknall, hides the heartbreaking fact that he is the victim of an advanced and aggressive terminal illness.
The brave one-year-old has been left blind and unable to feed naturally — by a rare condition known as Sanfilippo Disease (SD).
Now his mum, Lindsey Pascoe (also pictured), has launched an emotional plea to raise money for equipment and toys that will brighten Beau’s life.
She is appealing for support from kind-hearted businesses and residents in Hucknall to back ‘Beau Beau’s Fund’.
“When Beau was born, I knew he was different,” said Lindsey (37), of Annesley Road. “It must have been mother’s instinct.
“His symptoms are so aggressive and severe. It’s quite daunting. His condition is extremely rare.
“But he is a wonderful, happy little boy who brightens up a room.
“I felt I needed to take action to try and make his life easier. So any support from Hucknall or further afield would be really appreciated.”
Lindsey, who used to work at the Oasis dental practice on Portland Road, Hucknall, has given up her job to become Beau’s full-time carer. She also has two daughters — Charlotte (four) and Jessica (seven).
Already Lindsey and fellow members of Beau Beau’s Fund are gearing up for a fundraising event at the Oceans Of Fun play centre at the former Spring Street School in Hucknall. The venue, which has been donated for free, will host a ticket-only event on a date to be announced in July.
Single mum Lindsey is also planning a race night in the near future. One of the targets is to collect enough cash to buy specialist equipment for Beau, who has to be fed constantly through a tube into his stomach.
An example of the expensive kit is a chair called a ‘pea pod’, which costs £500. He also needs special vibrating toys, while a rain-cover for his wheelchair has to be ordered in from Italy.
There are also hopes to create a sensory garden at the family’s home.
Youngsters diagnosed with SD do not usually show severe symptoms until they are aged six or older. The average life-expectancy is just ten years.
Beau, who will turn two in August, cannot crawl and is likely to suffer seizures as his brain growth is affected.
He will become deaf as his condition worsens, so his mum is learning a form of touch sign language to enable her to communicate with him.
The youngster is under the care of Birmingham Children’s Hospital but also has regular appointments at the City Hospital and the Queen’s Medical Centre in Nottingham.
Added Lindsey: “Medical professionals working with Beau have never seen his illness so advanced in someone so young. I have decided that we will be positive for the sake of Beau and my girls. It is all about concentrating on one day at a time and enjoying as much time with Beau as possible.”
Beau was born in Devon after Lindsey moved there with the youngster’s father, who is a doctor.
When Beau was two-and-a-half months old, Lindsey decided she had to return to Hucknall to be near her family and friends.
Lindsey’s relationship with Beau’s father ended. But a week after returning to the Dispatch district, the youngster had an emergency appointment at The Park Hospital in Nottingham. Lindsey was devastated by news her baby was blind.
Genetic tests were carried out and Beau was diagnosed with SD, which is caused by an imbalance of enzymes used to help the body grow and develop.
“We do not know how long we have got,” said Lindsey. “So I feel I’m in a rush. Everyone who supports Beau’s fund will get a receipt for anything they donate. All the money will be spent on Beau. If anything happens to Beau, all the donations will go to charity.”
Anyone who would like to support Lindsey’s fundraising by donating money or items for raffles is asked to ring her on 07906 241152 or e-mail her at firstname.lastname@example.org. There are also plans to set up a website to showcase the progress of Beau Beau’s Fund — DISPIC NHUD12-1451-3.