IT’S a year since the Hucknall community took one little boy to their hearts following a plea by his devoted mother for help and support.
Through the pages of the Dispatch, Beau Angelides was introduced to the community when mum, Lindsey Pascoe, launched BoBo’s Fund.
Two year old Beau is suffering from a rare terminal illness called Sanfilippo Disease, which means he has to be fed through a tube in his stomach, has mobility problems, is blind and has a catalogue of other health issues.
Despite this, he is a lovely little boy who loves to be around his two older sisters, Charlotte, five and Jessica, eight, playing at his Annesley Road home as I found out when I visited him recently.
“I have been overwhelmed over the past 12 months by the amount of support and effort people have made to raise money for Beau,” said Lindsey who worked at the town’s Oasis dental clinic for 15 years before having to give up work to care for her son.
“It’s been a difficult time meeting all the demands that Beau’s condition brings both physically and emotionally. And it’s not just his day to day care but the countless hospital appointments we have to attend as well as ensuring my daughters are OK.”
The fund was launched in June 2012 at Hucknall’s Oceans of Fun and it prompted a huge response from tradesmen giving up their time to help, youngsters holding bake sales, bike rides, pub quizzes, race nights and all imaginable money-making activities.
Pineapple Hair held a fundraising week and the Muscle Factory have supported the family in various events.
“There have been so many random acts of kindness from all sorts of people,” explained Lindsey. “Even in their darkest days, people have thought about Beau and collected cash in lieu of flowers at funerals, which means so much.
“Strangers have been so surprising - just getting in touch and offering to fundraise for my little boy - who they don’t know and have never met. It has been truly amazing.
“A lot of people have poor opinions of Hucknall as a town but I was born and bred here and I totally disagree with them. I have been overwhelmed with kindness.”
Throughout the year money has been spent on specialist equipment as well as providing access ramps at the home and a sensory garden for Beau to enjoy the outside in his wheelchair.
“People don’t realise how much this equipment costs,” added Lindsey. “It’s only when you find yourself in this situation that you realise you don’t just get everything given to you. Because it is all specially made it costs a lot more than the normal equivalent.
“A raincover for Beau’s first wheelchair cost £225 and now he has a bigger wheelchair he needs a new cover which is £100. Just little things like this add up and as he gets older and bigger the demands increase and so do the costs.”
One fundraiser has become very special to the family. Mark Hand contacted Lindsey after reading about Beau and offered to do a sponsored bike ride for the fund.The pair soon became a couple and the extra support has been a blessing for Lindsey.
And Mark is about to embark on another challenge-cycling from Hucknall to Blackpool and back this Sunday in aid of Bluebell Wood Children’s Hospice which is also supporting the family.
“It is a wonderful place with special people and they hope to offer respite care in the future.”
As soon as Beau was born, Lindsey realised something was different about him.
“He wasn’t fixing with his eyes and would constantly wriggle and move as a baby,” explained Lindsey who was living in Devon at the time. “We finally got a diagnosis one week after his first birthday which devastated us.”
Since then, Beau has undergone numerous operations, physiotherapy and tests during his short life for the regressive condition which means he will suffer more over time and tragically is not expected to live beyond aged 10.
“He has been robbed of so much and we try not to think too far ahead,” added Lindsey as we watch Beau spin in his play cone. “We know he will regress and the girls have got books to help them understand. We also have a memory box we fill with special things that we can look back on.
“But for now it’s just about spending as much special time together as we can by taking days out as a family and making Beau comfortable and happy.”