Two fun days in Linby have raised over £5,000 for a poorly four-year-old Hucknall boy who needs expensive adaptations to his home.
Beau Angelides has been left blind, immobile and unable to feed naturally by a rare, life-limiting condition known as Sanfilippo Disease (SD) and his mum, Lindsey Pascoe, says the money raised will help towards the cost of creating a combined bed and bathroom at their Annesley Road home.
Donna Harris, the director of Applegarth Day Nursery, organised a ‘pirates and princesses’ day, which was followed with a charity event at the Horse and Groom pub in November, hosted by Debbie and Graham Beal.
Lindsey said: “They have been lovely and really supportive. It’s lovely what they have done. It is fantastic - really unbelieveable.
“Beau’s symptoms are very aggressive - he has just been diagnosed with moderate hearing loss and has to go to hospital next week for his eyes. He has very complex needs but he is a very happy little boy who lives life to the full. Carrying and caring for him is more difficult so we need adaptations to our house.”
Although Ashfield District Council has helped with some of the costs, and Lindsey is loaning a special bed from the British Red Cross, Beau needs a specialised water-jet for his bath which will help relieve the pain of his condition in the future.
The fun day featured a BBQ, bouncy castle, a cake raffle, a jumble stall and face painting, with big hearted regulars having beards and haircuts shaved off by hairdresser Claire Peach.
Donna said: “The highlight of the day was that Jack Davies had his whole beard shaved off - which he has had since 1970! I would also like to add a big thanks to all who have supported this charity including local businesses and all who have given money, gifts and their time. We raised a grand total of £5,100 which is a great achievement for such a small community.”