Nottinghamshire funeral directors show their support for Alex TLC charity

A Nottinghamshire-based funeral directors has raised tens of thousands of pounds for a national charity through hosting golf days, curry lunches and multiple generous donations.

A.W. Lymn has raised £38,377.47 for Alex, the Leukodystrophy (Alex TLC) in just five years, with its main fundraiser being a charity golf day which raised more than £23,000 in donations alone.

Alex TLC aims to support individuals who struggle with a rare medical condition – Leukodystrophy.

The main coordinator of these events, Ben Percival, fifth generation of the family business A.W. Lymn and great, great-grandson of founder Arthur William Lymn, has been overwhelmed by the support so far. 

He said: “Everyone at A.W. Lymn is so proud of what we have been able to achieve and the money we have raised. Having been diagnosed with Leukodystrophy myself, Alex TLC is a cause my family and the business hold close to our hearts.

“We are delighted to continue to support such a great charity and give back to the families that we serve and beyond.”

Alex TLC is a UK charity established in 2005 and remains the only organisation in the country dedicated to providing support, information and advocacy for individuals and families affected by leukodystrophy.

Leukodystrophy is a rare genetic condition. Since the charity’s inception, Alex TLC has made a significant impact within the rare disease community, earning international recognition as a centre of excellence for information, support and expertise.